Joscelyn's Journey

A Beautiful Child's Journey Through Hemimegalencephaly

Please Help Us Share Joscelyn’s Story at the Mayo Clinic’s Social Media Conference!

on July 22, 2013



I recently submitted an essay  to win a scholarship to the Mayo Clinic‘s Social Media Conference in October. (The contest information is posted here.)

According to the contest organizers, “The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to participate in its Social Media Week at Mayo Clinic, Oct. 21-25, 2013, in Rochester, Minn. through its third annual scholarship contest for patients and caregivers. ‘We want patients and caregivers to be represented in these events,’ says Farris Timimi, M.D., the center’s medical director. “Medical professionals typically have training and travel budgets to cover the costs of conference participation, while patients don’t. Our goal through the scholarship contest is to remove the expense barrier and make it practical for highly motivated patient advocates to join us.”

Scholarships are available to individuals who have been engaged with the patient experience, either as a patient or caregiver, and:

  • have already demonstrated a strong commitment to enhancing health and healthcare delivery via patient empowerment; and
  • have not, because of financial constraints, been able to attend this type of conference.

The Center for Social Media is now taking applications for three full scholarships to its Social Media Week events, including Social Media Residency, the #MayoRagan Social Media Summit and the annual member meeting of its Social Media Health Network. The scholarships will cover registration fees and tuition for the recipients to attend all three events and also will pay airfare and lodging costs.”

My goal is to travel to the conference and share Joscelyn’s story of hope and healing with some of the most influential medical professionals in the world so that many more children with epilepsy can benefit from her experiences.

At this point in the contest, I need to get enough “Likes” and “Comments” on the page where the article is posted to be among the 15 most popular posts submitted. A “Like” is great but a “Like and a “Comment” gets counted twice. (“Comments” on this blog post are always appreciated but are not counted in the contest.) If I make it into the top 15, judges will then select the 3 scholarship recipients from those entries. Voting will continue through August 9th. (Note: You have to click the “Like” button at the bottom of the post in order for your “Like” to count for the contest. If you click the “Like” button on the side of the essay, it helps to spread the word on Facebook but it doesn’t count for the contest. Thank you!)

 Whether I win the contest or not, I already feel like a winner because of the incredible way that all of you on “Team Joss” continue to support us on this journey!

Here is the link to the essay:

Again, Thank you!!


6 responses to “Please Help Us Share Joscelyn’s Story at the Mayo Clinic’s Social Media Conference!

  1. Vicki says:

    You and your family are an inspiration to EVERY family that deals with medical issues with their children. During the hard times you’ve stay the course…steady Eddy…never giving up and always providing education, experience, feelings, etc. of dealing with Joss’ issues. Your husband has been an active part in your journey as well. A marriage kids today could learn from. I am humbled by your efforts, your dedication, your love and your positive outlook during the trying times. God bless you and your family. I pray you win!

  2. Lisa Melton says:

    I am humbled and privileged to be a part of “Team Joss” and will follow your inspirational story to the ends of the world…not a day goes by that I don’t look at your life story and pull something from it to bolster whatever I am going through that day. I have said before that Joss is a special messenger, there are many ways to communicate and she is showing us how, we have only to listen to her through your voice Jennifer. Who knows what the future holds for her, but it is sure that she is a better investment than any money in the bank! Hugs and bunches of love, and perpetual prayers for all that is to come!

  3. Hi Jennifer,

    I was so sure you and Maya would win the contest at the Mayo Clinic. Sorry it didn’t work out. I’m so impressed by your web site and your story. Stay strong.
    Marilyn Martone

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