Joscelyn's Journey

A Beautiful Child's Journey Through Hemimegalencephaly

Whose Report Will You Believe?

on August 1, 2012

On Tuesday, Joscelyn had her fourth (and what we fervently pray will be her last!) surgery in as many weeks.

Dr. Baumgartner has taken out every last piece of “bad brain” he can possibly take in a final surgical attempt to try to stop her persistent epileptic seizures. What started out as a modified functional hemispherectomy is now very nearly a complete anatomical hemispherectomy.

 You would think after this much physical trauma, our tiny baby girl would be weak and frail, but miraculously, our amazing warrior princess seems to recover faster and better with each procedure! Less than twelve hours after being brought back to her room to recover from her fourth time in the OR this month, she was already smiling, playing with toys and actively participating in her physical therapy session!

 As the day progressed, she decided that the “hat” the OR nurses made for her wasn’t quite fashionable enough, so she set her sights on wiggling out of it. She escaped out of it over and over again, causing the nurses to try to a variety of wrapping and taping techniques to keep it secured before finally giving up and just letting her go without it.

I snapped this picture of her just moments before she managed to successfully thwart yet another of the nurse’s attempts to keep her head bandaged. She looks quite happy about the impending victory, doesn’t she? 😉

 So, where do we go from here?

 Her doctors will give her a few days to recover and to prove that her body can handle processing any excess cerebrospinal fluid. If it can’t, they will have to install a shunt to handle the fluid drainage so she doesn’t develop hydrocephalus. As you may remember, Joscelyn had to have a shunt put in after the first two surgeries.  Because shunts can’t get any blood matter in them, that shunt had to be removed in the course of this last surgery, which means that if she proves to need another shunt, they will have to take her back into surgery next week. Frankly, the likelihood of her not needing a shunt this time after needing one the last time is very low… but so what?

 We’re going to believe that she’s not going to need it anyway!

 And while we’re at it, we’re also going to believe that the surgery was a success and that our daughter is now completely and forever seizure-free!

 We’re going to believe these things because if we don’t, we’re going to lose weeks and months to worry. (See my post on not being late for your life HERE.) Joscelyn’s doctors have told us that they generally hold their breath for six months after hemispherectomy surgery waiting to see if a patient’s seizures will return. If Joscelyn remains seizure-free after six months, then the surgery will be declared to have been successful.

 So, the choice is simple.

 We can live every day for the next six months in total paranoia, panicking over even the slightest twitch or weird behavior…or we can just go ahead and start living our lives now as though she were already declared seizure free.

 It’s really just a simple matter of deciding whose report we want to believe!

 If you’re not familiar with gospel music, you might not be acquainted with a very simple but very powerful song called, “Whose Report Will You Believe?” written by Becky Fender and made famous by Ron Kenoly.

It goes like this:

“Whose report will you believe?
  We shall believe the report of the Lord!

  His report says
  I am healed!
  His report says
  I am filled!
  His report says
  I am free!
  His report says victory!”

Joscelyn’s doctors are telling us that she’s going to need another shunt.

 And that there’s a possibility her seizures might return.

 We love her doctors and intellectually, we acknowledge that they could very well be right on one or both counts. Their report is scientifically and statistically accurate.

But I like God’s report better!

Believing the doctors’ report means that my little girl will end up having 5 surgeries in 5 weeks instead of 4 surgeries in 4 weeks.

 Believing the doctors’ report means that we spend the next six months battling anxiety and living in a constant state of waiting, worrying and wondering.

 Believing in God’s report means that we walk in gratitude NOW for what has already been done!

Believing in God’s report means that we have peace, joy and comfort, instead of fear, agony and heartache.

But how can we be SURE that her she isn’t going to need the shunt or that her seizures aren’t going to return?

We’re just going to have to look at our precious little girl with eyes of faith.

“Now faith is being sure of what we hope for and certain of what we do not see.” Hebrews 11: 1

Of course, we’re still going to be observing our daughter carefully and making mental note of any odd behaviors- but we’re not going to be expecting any further seizure activity.

We’re choosing to live according to what’s been recorded in God’s report,

His report says she is healed!

His report says she is free!

His report says victory!

Whose report will YOU believe?

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31 responses to “Whose Report Will You Believe?

  1. Cynthia Greenly says:

    I choose to believe in our God, the mighty physician! Amen.

  2. God Bless. I am so glad she is recovering quickly. It is one day at a time with our kiddos. Christy comes home tomorrow after 6 weeks of hospitals. One day they will play together.

  3. evsmith07 says:

    I am with Cynthia! Our God is the mightiest of all….With God, ALL things ARE possible!! Joss is already proof of that!

  4. Chere Brickhouse says:

    Last week when you posted on facebook about Joss needing this 4th surgery, I started praying, thanking God for her complete healing and at that moment was reminded of is song. I commented on your facebook post all the while singing aloud to myself, “Whose report are we gonna believe? We shall believe the report of the Lord!” Just wanted to share. I am still believing for Joss! She is healed, filled, free and has total victory!!! Amen!!

  5. Cyndi Yanke says:

    What a cutie! I say live the life you want her to live, enjoy every minute of everyday, take every opportunity to share her story, and most importantly love her up!!! It was 4 years yesterday that Owen had his hemi he is still seizure free, I tend to freak out about every 18 months and demand an EEG to confirm I’m over reacting, he hasnt ever had a shunt either. Its a wonderful life!

  6. Tina Miller says:

    Amen. Amen and Amen. Love this post, the song and you ❤

  7. God bless all of you. You have a beautiful and very sweet daughter there. I wish the best for your baby and for you.

  8. Jenny Lynch says:

    Moses led the Israelites out of the wilderness and into the desert. It is there that they stood at the mountain of God and He made His presence known. You are standing at the mountain of God and His presence is evident in the strength, courage, and amazing smile of your Warrior Princess!

  9. Cassandra Hicks says:

    Praise the Lord!!!!! Prayers have already been answered, minimal bleeding, her “quick” activity post-op. I BELIEVE “The Report of the Lord.” Joscelyn IS HEALED, walk in the VICTORY of TOTAL healing and restoration. KEEP THE FAITH!!!!!!

  10. You know you can live in the moment and enjoy the miracle of Now with your little Angel. With no regrets, you take one day at a time and know you will be guided at each now moment to do what you must do to make Now sacred, good and sweet. The little one is teaching us all to live in the now. That’s why she can smile so readily. Now is all we have anyway. Let this sacred Now surround you and do not be afraid. All is well and as it should be for our highest good. We are all rich because of Little Joss and her Now moments!

  11. Andrea says:

    Amen, my friend! Standing in faith with you and choosing to believe GOD’S report of healing and wholeness for your precious warrior princess! Praying every day for all of you ~

  12. Susan says:

    Amen!! I am in agreement with you and your family. God is the healer!!

  13. Mariellen Barr in PA says:

    His report says VICTORY!!!! Joss is Free- Free indeed!!!!!!!

    -total goosebumps 🙂

  14. Tammie Vinson says:

    God is in control! Keeping your family in my prayers.

  15. June Silva says:

    Thank you so very much for the wonderful pictures and update. I always look forward to these and appreciate it when you send the wonderful pictures! God has given you so many gifts, including one where you are able to express yourself in such a beautiful way! Looking forward to spending time with your sons and Pat. I will feel even closer to all of you! I am so grateful your wonderful daughter looks so well and came thru this last surgery with that wonderful smile on her face! With Love, Prayers and appreciation! June

  16. mommasylvia says:

    I’m believing with you!

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