Joscelyn's Journey

A Beautiful Child's Journey Through Hemimegalencephaly

Sam Moran Contacts Joss!

on July 29, 2013

Oh, my goodness! 

I am in TEARS!

A few weeks ago, I posted a message on Sam Moran‘s Facebook fan page thanking him for sharing his wonderful gift of music with the world and most especially, with our baby girl, Joscelyn.  

As the mother of five, I know first hand that keeping little ones amused and entertained is always a challenge.  I’ve always appreciated the creators of Barney and Blue’s Clues, educational TV shows that bought me a few precious minutes of sanity while raising busy, rambunctious preschool aged boys.

Many of you might recognize Sam as the “Yellow Wiggle” in the Australian children’s musical group “The Wiggles“.  Joscelyn has always loved the Wiggles and I made sure to always bring their CDs and videos to the hospital with us whenever she checked in for epilepsy monitoring or surgery.

Seeing Sam on the computer or TV screen never failed to make Joss smile. When the nurses would come in to take her blood pressure or take blood from the tiny IV in her pudgy hand and Joscelyn would stiffen and cry out in fear,  I would turn on one of Sam’s videos and we’d listen to him sing “Twinkle, Twinkle Little Star” or another favorite Wiggles tune. 

Slowly, the numbers on the bedside monitor recording her heart rate would begin to go down and Joss and I would both relax.

When I posted the message on his fan page, I wanted Sam to know that all of the hours he spent practicing his music as a child, all of the professional dues he paid as an up-and-coming performer and all of the hours he spent away from his family touring with “The Wiggles” were appreciated; not just by mommies who enjoy having someone else entertain their  healthy, neurotypical children for 30 minutes so they can drink a cup of tea or read a chapter of a book in peace but also by a very sick little girl, in a far flung hospital room on another continent, fighting to recover from having one half of her brain removed.

And also by her mommy; an exhausted, stressed-out, under-slept, fearful and anxious mommy desperate to find something, anything, that would help take her baby’s pain away and restore some tiny measure of the carefree childhood joy that being born with epilepsy had denied her.

Joscelyn just celebrated five months of seizure freedom. Her recovery is progressing well and those dark days in the hospital are finally becoming a faded memory but still Sam Moran’s music plays a big part in Joscelyn’s recovery.

Three times a week, I drive Joscelyn to Orlando, Florida to receive occupational, speech and physical therapy. My daughter might be non-verbal but she made it quite clear to me early on that I would either be listening to her music in the car on the drive there and back or be made to suffer her wrath. :)

As you’ve probably already guessed, I now the words to every Wiggles song ever written. :)

You can imagine my delight, glee, joy, Nay! Sheer ecstasy… at finding out a few months ago that Sam Moran was releasing a SOLO project called “Play Along With Sam“.

NEW music! Hooray

As soon as it was available on iTunes, I immediately downloaded it and we’ve been happily rocking out to the fun and catchy songs on “Play Along With Sam” ever since. (Twinkle, Twinkle, Little Star is still Joss’ favorite.) :)

Joss’ therapists have also wisely figured out that the best way to get Joscelyn to cooperate with their requests is to bribe her with a Sam Moran song on the iPad. :)

Today, I went to the mailbox and found this:

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A package addressed to Joscelyn all they way from Australia!

Seriously, could these stamps be any cuter??

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Adorable!

We excitedly opened it to find:

joss

An autographed card!

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And an autographed copy of Sam Moran’s latest CD! 

Look, Joss!

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“Hey! That’s Sam Moran!” :)

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“Look, Everybody! I got mail from Sam Moran!” 

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“I’m gonna kick back and enjoy some tunes now!” :) 

You might have noticed that the CD has “Nick Jr” at the top of it. Sam Moran is the star of a new Nick Jr show called, “Play Along With Sam“. Unfortunately, it’s not yet available in the U.S. 

If you feel led to do so, Joss and I would love it if you could send a quick message to Nick Jr in the U.S. and ask them to bring “Play Along With Sam” to us! You can do so by clicking here: http://www.nickjr.com/home/write_to_us.jhtml

We are so grateful to Sam for his thoughtfulness and generosity! Thank you, Sam! 

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10 responses to “Sam Moran Contacts Joss!

  1. Daryl says:

    sent the request to nick jr for you :)

  2. Lisa says:

    Just requested it too!! What a wonderful person he must be to personally respond to the princess!

  3. Kandy Rochow says:

    I sent the message to Nick, Jr. :)

  4. Patricia Brandt says:

    Sent the request and I will share this with my FB friends many of them firefighters who I am sure will swamp Nick Jr with this request!) So happy that things are going so well for Joss!

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